tag:blogger.com,1999:blog-1892134081049774386.post2320970922812940216..comments2023-12-02T09:37:08.472-05:00Comments on Autism Jabberwocky: Glass Half Full of Wishful ThinkingM.J.http://www.blogger.com/profile/12033918835169823548noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-1892134081049774386.post-91716072145465417422011-12-12T14:33:52.436-05:002011-12-12T14:33:52.436-05:00I had not realized that being an autism mom is so ...I had not realized that being an autism mom is so great. <br /><br />I have decided to begin advocating that all children intentionally be given autism at birth via DNA therapy and toxic overdose for the benefit of the mother's parenting experience.Ginger Taylorhttps://www.blogger.com/profile/04200286625735078479noreply@blogger.comtag:blogger.com,1999:blog-1892134081049774386.post-18715084950509774652011-12-11T16:01:28.373-05:002011-12-11T16:01:28.373-05:00Looking at the abstract there is no information ab...Looking at the abstract there is no information about how the participants were selected (perhaps the author selected people who intentionally would give positive responses) and we have no idea what the overall level of functioning of these children are... the research is dubious at best and more likely supports someone's attempt at "feel good" research in autism.<br /><br />I'd be willing to bet if you conducted this semi-structured interview and then cross-referenced it overall functioning on the Vineland-II Adaptive Behaviour Scales or ABAS-II you'd see a very different picture.AutisticWisdomhttps://www.blogger.com/profile/01553708099437502270noreply@blogger.comtag:blogger.com,1999:blog-1892134081049774386.post-38261180168834593582011-12-09T17:46:47.461-05:002011-12-09T17:46:47.461-05:00I'll join the chorus, which is timely because ...I'll join the chorus, which is timely because I just left a similar message over at TPGTA about the costs and other hardships associated with raising an autistic child. I assume I will get a barrage of criticism.<br /><br />WE pay aprox 35k (AUS) a year for my sons therapy. Just yesterday I was talking to a woman who sold her home to pay for her daughters ongoing ABA. That woman is a single parent now as her marriage failed under the pressure. And like a&o my marriage too came close a few times to disintergrating due to the unrelenting stresses.<br />When my son was 8 months of age I was diagnosed with Post natal Anxiety, a direct consequence of my sons constant crying and need for motion.<br />Wine has been saviour through it all, but I didn't stop at the one glass a day that might provide health benefits :)<br />I understand how helpful it is to find some positives about raising an autistic child. It's been helpful and reassuring for me on my own journey to acceptance. But the risk here is that these sugar coating tales lead desperate parents to develop an even stronger sense of marginalisation and disconnection from others. WE have enough misinformation about autism to counteract without adding more.sharon Morrishttps://www.blogger.com/profile/15492764403059640967noreply@blogger.comtag:blogger.com,1999:blog-1892134081049774386.post-20898712201712970002011-12-09T14:40:46.375-05:002011-12-09T14:40:46.375-05:00Following in the footsteps of FW2:
Financial and ...Following in the footsteps of FW2:<br /><br />Financial and Employment: I had to give up my lecturing career (which had such great flexible hours, it was an otherwise perfect mum job), I couldn't even work part-time anymore because of my son's extremely high needs.<br /><br />Social and familial: Our marriage came extremely close to self-destructing because of the incredible levels of stress caused by raising an autistic child. We lived an isolated existence where my son wouldn't let people visit or let us visit people for a very long time. How's that for great for your social life?<br /><br />Health? Got to be kidding. Try back-pain from lifting a 4 year old to help him all the time with his limited skills and sensory issues. Try the headaches, lack of sleep and impact from excessive stress and isolation. Really great for the health.<br /><br />Etc.<br /><br />I love being a mum, I love my kiddies, but I know from personal experience that raising an autistic child is extremely hard and draining - no matter how positive my attitude - compared to raising a child who does not have autism (like my youngest). Any study that ignores or makes light of that reality, is not helping those who need the help the most.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1892134081049774386.post-60614367633353746252011-12-09T11:14:19.477-05:002011-12-09T11:14:19.477-05:00OK, after 12+yrs of being a SAHM, I have to admit ...OK, after 12+yrs of being a SAHM, I have to admit not going to work everyday has it's perks... not going to work.<br /><br />Financial... laughs. Yes, we are better off now then when we started but my Dh also has 3 extra part-time jobs on top of the farm. Has nothing to do with autism.<br /><br />Health - looks at the bottle of high bp pills... NOT!!!<br /><br />Social - lucky for us Dh has those 3 other jobs plus mine can be left with a sitter... oh, you mean actual friends not "do's"... moving on to the next...<br /><br />Yes, this autism thing is absolutely wonderful, marvelous... If I truly wished to put my life on hold for 20yrs while I raise them and then have to find care for the younger....<br /><br />Do I regret having them... never. I have NEVER blamed them, never regretted the choices I have made. Have I liked having to make those choices... No. But, it is what it is... and that's the way life goes sometimes.farmwifetwohttps://www.blogger.com/profile/02680758336779501712noreply@blogger.com